Ukukhulisa ingane enezidingo ezikhethekile zokunakekelwa kwezempilo akuyona umsebenzi olula. Kungakhathaliseki ukuthi ukukhubazeka komntanakho kunzima kangakanani noma kungabonakala kungabonakala kanjani ezweni elingaphandle, akungabazeki ukuthi akulona okwakunakho lapho uthola ukuthi unomntwana.
Uma manje uzithola uzondla ingane nge-spina bifida, ungase uphazamiseke futhi udideke. Cishe futhi ugcwele uthando kanye nesifiso esikhulu sokwenza konke ongakwenza ukuze unike ingane yakho impilo engcono kakhulu.
Nakuba ukuphila okuqhubekayo kungase kungabi yilokho owakulindele, ungayiphatha. Ngokusekelwa okulungile, ulwazi, nokuqondiswa, wena nomntanakho cishe nizophila impilo engcono kunalokho ongacabanga uma uthola ukuxilongwa.
Ukuqala, kunezidingo ezithile zezokwelapha okufanele uziqaphele futhi uzilungiselele. Ukwazi ukuthi ungalindela nokuthi ungabhekana kanjani kuzokwenza izinto zibe lula ngokuhamba kwesikhathi.
Izinsizakalo ze-Spina Bifida
Uma ufikile kuleli khasi, kungenzeka ukuthi wazi okungenani mayelana ne-spina bifida. Ngamafuphi, kunezinhlobo ezintathu ze-spina bifida.
- I-spina bifida occulta - Lena yindlela elula kakhulu ye-spina bifida. Kukhona igebe emgodleni, kodwa akukho ukuvula noma isikhala ngemuva.
- I-Meningocele - Lokhu kwenzeka uma kukhona isikhwama se-fluid ngemuva, kodwa intambo yomgogodla ayikho esikhwameni. Ngokuvamile kunomonakalo omkhulu wezinzwa ngalolu hlobo lwe-spina bifida.
- I-Myelomeningocele - Lona uhlobo olunzima kakhulu lwe-spina bifida. Kukhona isikhwama semithombo yamanzi ezingeni legebe emgodleni. Umgogodla uphinde uphonswe esikhwameni somswakama emhlane wengane, futhi kungaba nomonakalo omkhulu wezinzwa.
Izinkinga Zezokwelapha Ezihlobene Ne-Spina Bifida
Ukukhathazeka ngamathumba / kwesisindo
Iningi lezingane ezine-spina bifida linomonakalo emithanjeni eholela esibhedeni nasemathunjini. Lo monakalo wezinzwa uthinta indlela ingane yakho izokhipha ngayo futhi ibe nokunyakaza kwesisu. Nakuba umcabango wokwehlisa ingane yakho ungase ubonakale uvalo ekuqaleni, qiniseka ukuthi izinkulungwane zabazali zenza lokhu ngempumelelo nsuku zonke. Umhlengikazi noma udokotela wengane yakho uzokubonisa indlela yokwenza le nqubo futhi uqinisekise ukuthi ukhululekile nayo ngaphambi kokukuthumela ekhaya.
Kuzohlale kubalulekile ukuqinisekisa ukuthi ingane yakho ithola i-fiber eyanele ekudleni kwayo ukuze kugcinwe izithambile. Inani lokungenelela okudingekayo ekusizeni ngokunyakaza kwamathumbu kuzokuxhomeka ekuqotheni komonakalo wezinzwa. Ezinye izingane ziyakwazi ukuhamba ngokuzenzekelayo, kanti abanye badinga ukufakela i-suppository ukuqinisekisa ukuthi bangahamba.
Ukukhathazeka nge-Orthopedic
Izingane ezine-spina bifida zingaba nokukhathazeka okuhlukahlukene kanye nokwebiwa kwamathambo. I-orthopedist yingxenye ebalulekile yethimba lezokwelapha lezingane. Ukuqinisekisa ukuthi uke wabheka noma yiziphi izinkinga ezibalulekile ezifana ne-clubfoot, izivumelwano zomgogodla, nokuhlukaniswa kwe-hip kubalulekile ukuze bakwazi ukuphathwa noma ukulungiswa. Kuningi ukungenelela okungasiza ngalezi zimo.
Udokotela wengane yakho cishe uzotusa ukwelashwa ngokomzimba ukuqinisekisa ukuthi uzoba nomsebenzi omkhulu ngangokunokwenzeka emzimbeni wakhe ophansi. Uma ungazi kahle u-spina bifida, ungakholelwa ukuthi wonke umuntu onalo isitulo sabakhubazekile. Nokho, akunjalo. Izingane eziningi kanye nabantu abadala abane-spina bifida bayakwazi ukuhamba noma ukuhambela ngaphandle kwesitulo sabakhubazekile.
Ngezinye izikhathi ama-orthotic ayadingeka ukuze kusize imisipha emaphethelweni aphansi azinze. Ithimba lezempilo lezingane yakho lizosiza ekunqume ukuthi lizozuzisa yini. Ezinye izingane azikwazi ukusebenzisa iziphetho zazo ezingaphansi futhi zingadinga ukusebenzisa isihlalo sabakhubazekile.
Izingane ezincane ezinyangeni ezingu-18 zingase ziqale ukusebenzisa isihlalo sabakhubazekile uma kubonakala kudingekile futhi kuphephile.
Impilo Yesikhumba
Lapho izingane (noma abantu abadala) ziye zinciphisa ukusebenzisa ingxenye yomzimba, zisengozini enkulu yokuphulwa kwesikhumba. Uma kunengcindezi eqhubekayo engxenyeni eyodwa yomzimba, kulula ukuba isikhumba sithukuthele futhi sithuthukise izilonda zokucindezeleka. Lezi zingaqala ukuthuthuka kungakapheli amahora amabili.
Kuzodingeka ukuthi uhlole isikhumba somntanakho nsuku zonke ukuze uthole izimpawu zokucindezela noma ukucasuka. Uzofuna ukubuka:
- Izindawo ezibomvu ezingahambi ngemva kwemizuzu engu-10-15
- I-Bruises
- Ukukhwabanisa
- Ukunqunywa
- Blisters
- Ukushisa
Uma ubona noma iyiphi yalezi zinto esikhumbeni somntanakho, xhumana nomhlinzeki wakhe wezempilo. Ukugqoka okukhethekile noma ukwelashwa kungadingeka ukuze usize isikhumba siphulukise.
Uma ingane yakho iselula, qiniseka ukuthi ayidonseli izinyawo / imilenze yakhe noma idala ukungqubuzana kunoma iyiphi ingxenye yomzimba. Ukunyakaza okuphindaphindiwe okubangela ukungezwani esikhumbeni kungaholela ekuphukeni kesikhumba ngokushesha. Lezi zilonda zingeneke kalula, ngakho-ke qiniseka ukuthi ufuna usizo lwezokwelapha uma uqaphela ukuthi ingane yakho ihlakulela lolu hlobo lokuchithwa kwesikhumba.
Uma ungena emkhakheni wokwenza ukuhlolwa kwesikhumba okungenani nsuku zonke futhi ufundisa ingane yakho izindlela zokudlulisela ezifanele njengoba ekhula ngokwanele ukuze azungeze yedwa, akukhona lokho kunzima ukuvimbela ukuchithwa kwesikhumba.
Hydrocephalus
Amaphesenti angaba ngu-80 abantwana abazalwa nge-spina bifida futhi banesimo sezokwelapha okuthiwa i-hydrocephalus. Emibhalweni yomuntu, ngokuvamile ubizwa ngokuthi "amanzi ebuchosheni," nakuba lokho akuyona incazelo enembile. I-Hydrocephalus iyinani eliningi ngokweqile le-cerebrospinal fluid (CSF) elizungeze ubuchopho. Izingane ezine-hydrocephalus zivame ukwenziwa ukuhlinzwa ukufaka idivayisi ebizwa nge-ventriculoperitoneal (VP) shunt, okuyisigqabhezana esigijimayo kusuka ezingxenyeni zengqondo kuya endaweni ye-peritoneal esiswini. Ivumela uketshezi ukuthi uphephe ebuchosheni bese kungena esiswini lapho kungena emzimbeni.
I-Latex Yokuqapha
Izingane eziningi ezine-spina bifida zine-latex allergies noma zidinga ukuthatha izinyathelo zokugwema i-latex njengoba ukuphuza ukuphuza kwe-latex kungakhula nganoma isiphi isikhathi. I-laatex allergies ngokuvamile ikhula ngenxa yokuxhumana njalo nemikhiqizo equkethe i-latex. Ngenxa yesidingo sokwenza i-catheterization (ngezinto eziqukethe i-latex) izikhathi eziningi ngosuku, nsuku zonke, iningi labantu abane-spina bifida liphela ngokungezwani komzwelo noma ukuzwela kwe-latex.
Uma unomntwana onesifo se-spina bifida, udinga ukuqaphela izibonakaliso zempendulo yokugula. Ngoba ingase ithuthuke kancane ngokuhamba kwesikhathi, udinga ukwazi ukuthi ungayilindela ini.
Izimpawu ezivamile zendlela yokuphikisa zihlanganisa:
- Itching
- Ukuthukuthela / ukucasula isikhumba
- Sneezing kanye / noma impumu egijima
- I-chechy, amehlo enamehlo
- Isikhukhula
- Izwi eliphuthumayo
- Ukuphefumula noma ukuphefumula
Impendulo enamandla yokwelapha okuthiwa i- anaphylaxis ingakhula nganoma isiphi isikhathi. Izimpawu ze-anaphylaxis zihlanganisa:
- Ukuphefumula okunzima
- Liphu nokukhuluma ulimi
- Isizungu
- Ukudideka
- Yehlisa ukucindezeleka kwegazi
- Ukuvota
- Inkulumo emisiwe
- Ukulahlekelwa kokwazi
Uma ubona izibonakaliso zokuphendula okweqile, xhumana nomhlinzeki wezempilo wezingane yakho ngokushesha. Uma ucabanga ukuthi ingane yakho ingase ibhekene nokuphendula kwe-anaphylactic, shayela u-911 noma ufune usizo oluphuthumayo lwezokwelapha.
Ukuhlinzwa
Izingane ezine-myelomeningocele-uhlobo olubi kakhulu lwe-spina bifida-ngokuvamile zidinga ukuhlinzwa. Kwezinye izimo, lokhu kungenziwa ngo-utero, kanti umama usakhulelwe. Lolu hlobo lokuhlinzwa aluvamile, ngakho akuyona inketho yonke indawo. Ezinye izingane zizodinga ukuhlinzwa emva kokuzalwa. Uma uthola ukuxilongwa kwe-spina bifida, udokotela wakho uzoxoxa ngezinketho zokukhetha zokuhlinzwa nawe futhi anqume ukuthi yini ingane yakho ezoyidinga, uma kukhona.
Izwi elivela ku-Verywell
Ukubhekana nokuxilongwa kwengane ka-spina bifida kungasabeka kakhulu futhi kukhulu, kodwa akudingeki kube ngaleyo ndlela. Ngokuvamile isimo esilawulekayo uma nje usaziswa futhi ulungisiwe. Kubalulekile ukukhumbula ukuthi ingane yakho ingumntwana kuqala. Akachazwa ngokuxilongwa kwakhe futhi akudingeki ukuba abe nomkhawulo omkhulu. Uma ungazizwa ngale ndlela njengomzali ekuqaleni, kulungile. Zinike isikhathi sokubhekana nesibindi, usizi, noma uvumelane neshintsho esiqondisweni esikuthathile impilo yakho. Njengoba unina wengane enezidingo ezikhethekile zidinga mina, ngiyazi ukuthi akuyona indlela elula. Ngenhlanhla, ngibuye ngizuze ukwazi ukuthi kungaba kuhle kanjani. Ngaphezu kwakho konke, thanda ingane yakho futhi wenze konke ongakwenza ukuze umnike impilo engcono kakhulu.
> Imithombo:
> Izidingo ze-Bowel / Bladder & Care - spinabifidaassociation.org. http://spinabifidaassociation.org/find-support/resource-directory/bowel-and-bladder-needs-and-care/.
> CDC. Amaqiniso | I-Spina Bifida | I-NCBDDD | I-CDC. Amasevisi Okulawula Nokuvimbela Izifo. https://www.cdc.gov/ncbddd/spinabifida/facts.html. Ishicilelwe ngo-Okthoba 17, 2016.
> I-Hydrocephalus Fact Sheets | I-National Institute of Neurological Disorders and Stroke. https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Hydrocephalus-Fact-Sheet.
> Imfucumfucu yemvelo yeLatex Ukuzivocavoca - spinabifidaassociation.org. http://spinabifidaassociation.org/project/natural-rubber-latex-allergy/.
> Izidingo Ne-Orthopedic Nezokwelapha - spinabifidaassociation.org. http://spinabifidaassociation.org/find-support/resource-directory/orthopedic-needs-and-care/.