Umthethosivivinywa wamaLungelo weNICU Parent uyidokhumenti ebalulekile nemigomo yokusiza ukudala ukucaca nokuvikela abantu ngabanye.
Umthethosivivinywa wamaLungelo kuyindlela enhle abazali ukuba baqonde ukuthi bangazicela futhi balindeni ngesikhathi sokuhlala kwabo kwe-NICU. Lolu hlu lwezingqinamba eziyishumi ezibalulekile nalokho okumele abasebenzi bakwaNICU bazise futhi bazame ukuhlonipha lapho benakekela abazali beziguli zabo ze-NICU.
Ngomzuzwana, sizobheka izitatimende ngayinye eziyishumi kumthethosivivinywa wamalungelo we-NICU Parent. Kodwa okokuqala, kufanele sibuze:
Kungani NICU Abazali Kudinga Umqulu Wamalungelo?
Amantombazane azalwa kusenesikhathi, noma azalwa agule futhi aphephile, adinga uhlobo lokunakekelwa okukhulu kwezobuchwepheshe abazali abangakwazi ukukunikeza. Lezi zingane zidinga ukunakekelwa okujulile, futhi ngaleyo ndlela ziqala uhambo lomndeni neNyunithi Yokunakekelwa Okunakekelwa Nge- Neonatal .
Lolu hambo lunye lapho abazali beba khona imfundo encane kakhulu, ukulungiselela kangako. Kungokomzwelo kakhulu kangangokuthi kunzima kubazali ukubuyela emuva futhi bacabange ngezinjongo zabo ezinkulu namaphupho nezingane zabo ezintsha. Esikhundleni salokho, abazali bavame ukuzizwa sengathi bahanjiswe esivumelwaneni semisho yezokwelapha nemishini eyinkimbinkimbi, ezungezwe ngabasebenzi abonakala bazi konke mayelana nezingane zabo. Kuyadabukisa kakhulu, ukusho okungenani.
I-NICU ngayinye emhlabeni wonke ihlukile, okusho ukuthi abazali abesekelayo bayayithola kuhlukile kuNICU kuya ku-NICU.
Abanye abazali abasoze badinga uMqulu Wamalungelo ukuqondisa abasebenzi babo be-NICU ngoba basekelwa ngokumangalisayo, bahlanganisiwe futhi banakekelwa. Kodwa ngeshwa, abanye abazali be-NICU abanakekelwa kakhulu, bazizwa bodwa futhi bedidekile ngokuthi bangazibopha kanjani futhi babambe iqhaza ekuphileni komntwana wabo.
Ngenhlanhla, iqembu elizinikezele labazali abanikezelayo abaye labhekana nalolu phiko bangena ekusizeni.
Bayazi ukuthi kwakunjani ukuba ngumzali weNICU baby, futhi bayazi ukuthi bafisa yini ukuthi babekhona kubo lapho izingane zabo zikhona ku-NICU.
Ubani owadala i-NICU Abazali Bill yamalungelo?
Ngo-2013, i-Preemie Parent Alliance yalungisa lolu daka oluhle, olucatshangelwe ngokucophelela oluveza izinto eziyishumi ezibucayi okumelwe zikhumbule ngalokho abazali beNICU ababhekana nazo nokuthi bafanelwe kanjani ukusekelwa endleleni.
Le nhlangano-i-PPA-iqukethe abaholi bomcabango emhlabeni wokusekelwa kwe-Preemie Parent, ngakho-ke kungokwemvelo ukuthi leli qembu labazali linolwazi nokuzinikezela ukukwazi ukudala idokhumenti ebalulekile.
Bayidala ngokusekelwe ekuqapheliseni ukuthi ukunakekelwa okugxile emndenini kuyindlela engcono yokunakekela izingane kanye nemindeni yabo. Izinhlangano eziningi zokunakekelwa kwempilo ezifana ne-American Academy of Pediatrics, i-American Hospital Association, nokunakekelwa okuqhubekayo komndeni njengendlela ebalulekile yokunikeza ukunakekelwa okungcono kweziguli. Futhi ngesizathu esihle-ucwaningo oluningi luye lwabonisa izinzuzo ezinhle zokunakekelwa komndeni ku-NICU.
Laba bazali be-NICU abaphenyisisa izinkinga ezibalulekile kubazali be-NICU, abhalwa futhi bahlelwe, baxoxwa futhi baguqulwa baze bafike ohlwini oluyishumi oluphezulu lwamalungelo abaluleke kakhulu abakholwa ukuthi bonke abazali be-NICU kufanele baqaphele.
Ngokungafani nokuchitshiyelwa koMthethosisekelo, noma kunjalo, lo Mthethosivivinywa waMalungelo awunalo igunya lokusemthethweni. Ama-NICU awadingeki ukuba avumelane nawo, futhi awaziwa kabanzi. Noma kunjalo.
Ngakho-ke kuya kubazali ngabanye nabahlengikazi, odokotela kanye nabahlengikazi, ukuze bafunde kabanzi ngakho futhi bathole izindlela zokuyiqalisa ku-NICU yabo.
Manje, ake sibheke izitatimende eziyishumi ezibandakanya umThethomlingwa wamaLungelo weNICU Parent:
UmThethomlingwa wamaLungelo weNICU Parent we-Preemie Parent Alliance
UMthethosivivinywa wamaLungelo uhlanganisa lezi zitatimende eziyishumi, njengoba kukhulunywe ngombono weNICU baby:
1. Abazali bami yizwi lami kanye nabameli bami abakhulu; Ngakho-ke, izinqubomgomo zezibhedlela, kuhlanganise namahora okuvakasha kanye nokujikeleza, kufanele zibe njengobuningi ngangokunokwenzeka.
Lesi sitatimende sokuvula sikhombisa ukuthi abazali basalwela ukubhekwa njengabalulekile amalungu eqembu lokunakekela izingane. Ngokuvamile, izinqubomgomo zesibhedlela zangesikhathi esidlule zisheshe zisuse abazali ku-NICU. Yize lokho kungabaluleke kakhulu ukuze i-NICU ihlinzeke ukunakekelwa okuphephile nobumfihlo bomndeni, ngokuvamile kaningi ngaphandle kwemindeni engadingekile. Futhi lokho kukhishwa kuyingozi kakhulu kubazali ababophayo nabantwana babo. Ngakho isitatimende sokuqala sibeka ithoni yeBill Bill Yamalungelo wonke-isicelo sokufaka abazali ngangokunokwenzeka.
2. Ukuze ngikulungele ukuhlangabezana nezidingo zami lapho ngikhululwa, abazali bami kudingeka baqonde ukuxilongwa kwami kwezokwelapha. Yiba nesineke futhi ubafundise kahle.
Lesi yisikhumbuzo esilula kubasebenzi be-NICU-abazali badinga ukuqonda okucacile kwazo zonke izifo zezokwelapha ukuze banakekele kangcono izingane zabo. Ngezinye izikhathi odokotela nabahlengikazi abahluleki ukuthi abazali abaqondi ukuthi kwenzekani.
3. Ukubambisana kubalulekile ekuthuthukiseni kwami. Vumela futhi ukhuthaze abazali bami ukuba bangibambe njalo ngangokunokwenzeka.
Wonke umzali unesifiso esiqinile nesihle nomntwana wakhe. I-NICU iphazamisa lokho kuhlanganiswa, ngezindlela eziningi. Ukuhlukana ngokomzimba, ukungabi namandla-ekunakekelweni, ukukhathazeka nokukhathazeka konke kuhamba ngendlela yokulula, ukubopha kwemvelo. Ngakho laba abazali nemindeni badinga ukunakekelwa okwengeziwe ekusizeni lelo fomu lesibambiso.
Ama-NICU aphayona asezimisele kakhulu ukuhambisa abantwana kusuka emibhedeni yabo eyinkimbinkimbi yezokwelapha futhi uwabeke isikhumba ukukhumba nabazali babo ekuqaleni nangaphambili, okusiza abazali bazizwe bexhunyiwe. Ucwaningo lubonisa ukunakekelwa kwe-kangaroo kuyasiza .
4. Siza ukulungiselela abazali bami ukuba babe ngabanakekeli bami abakhulu uma ngiya ekhaya. Bakhuthaze ukuba bahlanganyele ekunakekeleni kwami nsuku zonke ngangokunokwenzeka.
Ukunakekela ingane yabo kuyinhloko ebaluleke kunazo zonke abazali abanayo. Uma abazali bengakwazi ukuhlinzeka noma yini enakekela izingane zabo, kuyinto edabukisayo kakhulu. Ngomzamo omncane, abazali bangafundiswa eziningi zokukhathazeka njalo abahlengikazi abahlinzekayo. Le nto kumthethosivivinywa wamaLungelo awubalulekile kuphela uma abantwana beya ekhaya, kodwa kusiza nokubopha ngesikhathi sokuhlala kwe-NICU.
5. Ukudla kusiza abazali bami ukuba bazizwe "bejwayelekile." Ngicela bavumele ukuba bangondle ngamabhodlela noma ngamabele, noma yikuphi okusebenza kangcono kimi nabazali bami. Usizo luqinisekisa umama ukuthi kulungile uma engakhiqi ubisi.
Uma kuncane kakhulu uzizwa evamile ku-NICU, kuyiqiniso ukuthi ukondla umntwana uzizwa njengomsebenzi obalulekile womzali, futhi kubaluleke kakhulu njengengxenye yalokho okuhlangene nakho.
Lokhu kubalulekile ngempela ukuba abahlengikazi be-NICU baqonde futhi basebenzise. Abanye abahlengikazi bangathola indlela yokubamba umsebenzi wabo obunzima, ngokuvamile bezondla izingane ngokwabo uma kusho ukuthi usuku lwabo luzohamba kahle. Futhi akusho ukulimala, banomsebenzi onzima futhi omatasa ukuwenza.
Kodwa lesi sitatimende seBhilidi yamaLungelo siyisikhumbuzo esibalulekile sokuthi ukudla, nakuba mhlawumbe kungasebenzi kahle uma kwenziwa ngabazali, kubaluleke kakhulu ekusebenzeni kwabo kokubambisana. Uma kunokwenzeka, kubalulekile ukugcina lesi senzakalo kubazali.
6. Uma mina, noma omunye wabantwana bami, sidlulile ngenkathi ku-NICU, khumbula ukuqhubeka ubhekisela kithi njengeziphindaphindiwe (ama-twin / triplet / quads, njll). Kubalulekile kubazali bami ukuthi uqhubeka uhlonipha futhi uvuma impilo ngayinye.
Lesi sicelo sivela kubazali abaye babhekana nale nhlekelele ngokwabo. Benza wonke umuntu azi indlela engcono yokusingatha lesi simo esibucayi.
Izikhathi eziningi, abantu abazi ukuthi kufanele bakhathalele kanjani futhi bazwele ngokufa kwengane, ngisho nabahlengikazi be-NICU, nabasebenzi. Akekho ofuna ukuqhubeka ecasula umzali osizilayo olahlekelwe ingane , izikhathi eziningi abantu abangenandaba nesihloko, benethemba lokugwema iminye imizwa.
Kodwa abazali bathi ngokuphindaphindiwe ukuthi bakhetha ukulahlekelwa kwabo. Abalokothi bakhohlwe ingane yabo, futhi bazizwe benesihlungu xa bonke abakuzungezile bebonakala bekhohliwe. Ngakho-ke sicela uqhubeke futhi ukhumbule ukukhuluma ingane eshonile - bayayithanda.
7. Nakuba ngingase ngibe yisikhathi esiphezulu se-preemie , i-NICU isengaba yindawo eyingozi kakhulu kubazali bami. Qiniseka ukuthi bathola i-TLC nje, ulwazi, imfundo kanye nezinsiza eziningi njengabazali bomngane wami omncane.
Lesi yisikhumbuzo esimangalisayo sokunakekelwa ukunakekelwa okufanayo nokukhathazeka kwabo bonke abazali, kungakhathaliseki ukuthi ubude be-NICU bahlala noma bunzima besimo sabo somntwana. Ngisho noma ingane ingaba nesikhathi esizinzile futhi esilula ku-NICU, abazali bayo basaphazamiseka, besaba futhi bayakufanelekela ukunakekelwa ngokucophelela.
8. Khuthaza abazali bami ukuba baye emibuthanweni yokunakekela futhi bahlele njalo. Ziyingxenye ebalulekile ekunakekelweni komndeni futhi zisiza ukufundisa abazali bami mayelana nentuthuko yami nokubikezela isikhathi eside.
Iyini inkomfa yokunakekelwa? Umhlangano wabazali be-NICU, abahlengikazi be-NICU, odokotela, abahlinzayo, nanoma ubani omunye ohilelekile ekunakekeleni umntwana. Leli thuba wonke umuntu ohilelekile empilweni yomntwana ukuxoxa ngalokho okuqhubekayo nokuthi yiziphi izinhlelo ezizokwenzeka esikhathini esizayo.
Ngeshwa, abanye abazali be-NICU akakaze banikezwe ithuba lokuba nenkomfa yokunakekelwa, futhi ngaphandle kwalokho kuhlanganiswa enkambweni yokwenza izinqumo, abazali basala bezwa njengabalaleli empilweni yengane yabo.
Izingqungquthela zokunakekela zinika abazali indawo yazo efanele eqenjini, njengomuntu oxabisekileyo okhathalela ngokujulile isiguli, obani futhi obaluleke kakhulu empilweni yengane.
9. Abazali bami banelungelo lokukwazi konke ngami. Bavumele ukufinyelela okuvulekile kumarekhodi ami wezokwelapha futhi bakhuthaze imibuzo yabo.
Ngeshwa, abazali bavame ukuphikiswa ukufinyelela kumarekhodi ajulile ekunakekeleni kwezingane zabo. Futhi nakuba abazali abaningi bengenandaba nokuzithola, labo bazali abafisa lokho kufanele bafinyelele ngokuphelele kubo.
Ngokuvamile kubhekwa njengendlela engcono kakhulu kubantu abangaqeqeshwe kwezokwelapha ukubuyekezwa amarekhodi anelungu lethimba lezokunakekelwa kwezempilo elikhona, ukuze basize ukuchaza lokho okuqukethwe kumarekhodi. Eqinisweni, ezinye izibhedlela zidinga lokhu. Kungani? Indlela eyingqayizivele yokwelapha nokwelapha ishadi, kanye nezwi lobuchwepheshe bezokwelapha, lingabangela ukudideka nokukhungatheka okungenzeka uma kufundwa ngaphandle kokuqonda nokuqondiswa. (Kuthiwani uma unqatshelwe ukufinyelela kumarekhodi akho?)
10. Abazali bami babhekana nezinkinga eziningi. Sicela ube nesineke, ulalele, futhi ukhokhele ukwesekwa kwakho. Yabelana ngolwazi mayelana nezinsiza ezifana nezinhlelo zokusekela ezontanga, amaqembu okusekela, nokululekwa, okuzosiza ukunciphisa i-PTSD, i- PPD , ukukhathazeka nokucindezeleka.
I-NICU impela, kunzima ngempela kubazali . Ngisho noma umsebenzi we-NICU oyinhloko ukukhathalela umntwana, iqiniso liwukuthi abasebenzi be-NICU nabo bafaneleke kakhulu ukuqinisekisa ukuthi abazali basala benempilo futhi baphephile kuwo wonke. Kungani? Kungenxa yokuthi izingozi zokucindezeleka emva kokubeletha, i-PTSD, nokuningi kukhona kwangempela, futhi abasebenzi be-NICU baxhumana nabazali nsuku zonke. Lokhu kwenza kube nomumo oqondile wokungenelela futhi usize abazali bathole usizo abaludingayo.
Ama-NICU amaningi awanakho ukuqeqeshwa okwanele kwabasebenzi bawo ekuhlinzekeni ukukhathazeka ngokomzwelo nokuhlola abazali. Lesi sitatimende sokugcina esiMthethweni Wamalungelo siyisicelo seNICU yonke indawo ukuqaphela indima yabo, nokuhlinzeka ukunakekelwa kanye nemithombo kwezinye iziguli-abazali.
I-PPA ijabulela ngabanye ngabanye kanye ne-NICU ukuphrinta nokubonisa uMthethosivivinywa wamaLungelo wabo we-NICU Parent. Zizwa ukhululekile ukulanda ikhophi yakho, noma uxhumane ne-PPA uma ungathanda ukuqhubeka uxoxisana nokusetshenziswa koMqulu wamaLungelo weNicu Parent kusikhungo sakho.
[Umthethosivivinywa wamalungelo weNICU Parent wakopishwa lapha ngemvume ye-PPA, Meyi 2016]